Responsible Genomic Data Sharing

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  • Author : Xiaoqian Jiang, PhD
  • Publisher : Academic Press
  • Pages : 384 pages
  • ISBN : 9780128161975
  • Rating : /5 from reviews
CLICK HERE TO GET THIS BOOK >>>Responsible Genomic Data Sharing

Download or Read online Responsible Genomic Data Sharing full in PDF, ePub and kindle. this book written by Xiaoqian Jiang, PhD and published by Academic Press which was released on 15 July 2019 with total page 384 pages. We cannot guarantee that Responsible Genomic Data Sharing book is available in the library, click Get Book button and read full online book in your kindle, tablet, IPAD, PC or mobile whenever and wherever You Like. Recent technological advances have dramatically decreased the cost of genome sequencing, making it more affordable to collect genomic data from private citizens and patients, and subsequently employ this data to support new biomedical research and drug discovery. In Responsible Genomic Data Sharing: Challenges and Approaches international experts in genomics research, bioinformatics, and digital security analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for Genomics and Health, the Beacon Network, and the Matchmaker Exchange, are discussed in-depth, illuminating pathways forward for new genomic data sharing efforts across research and clinical practice, industry and academia. Fully examines policy and technical aspects of genomic data sharing in research and clinical practice Addresses privacy preserving technologies and how they can be applied to enable responsible genomic data sharing Employing illustrative case studies, analyzes emerging genomic data sharing efforts, common challenges, and lessons learned Features chapter contributions from international experts in responsible approaches to genomic data sharing

Responsible Genomic Data Sharing

Responsible Genomic Data Sharing
  • Author : Xiaoqian Jiang, PhD,Haixu Tang, PhD
  • Publisher : Academic Press
  • Release : 15 July 2019
GET THIS BOOK Responsible Genomic Data Sharing

Recent technological advances have dramatically decreased the cost of genome sequencing, making it more affordable to collect genomic data from private citizens and patients, and subsequently employ this data to support new biomedical research and drug discovery. In Responsible Genomic Data Sharing: Challenges and Approaches international experts in genomics research, bioinformatics, and digital security analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for

Responsible Genomic Data Sharing

Responsible Genomic Data Sharing
  • Author : Xiaoqian Jiang,Haixu Tang
  • Publisher : Academic Press
  • Release : 14 March 2020
GET THIS BOOK Responsible Genomic Data Sharing

Responsible Genomic Data Sharing: Challenges and Approaches brings together international experts in genomics research, bioinformatics and digital security who analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for Genomics and Health, the Beacon Network, and the Matchmaker Exchange, are discussed in-depth, illuminating pathways forward for new genomic data sharing efforts across research and clinical practice, industry and academia. Addresses privacy preserving technologies and

Genomic and Precision Medicine

Genomic and Precision Medicine
  • Author : Geoffrey S. Ginsburg,Huntington F Willard
  • Publisher : Academic Press
  • Release : 22 November 2016
GET THIS BOOK Genomic and Precision Medicine

Genomic and Precision Medicine: Translation and Implementation highlights the various points along the continuum from health to disease where genomic information is impacting clinical decision-making and leading to more personalization of health care. The book pinpoints the challenges, barriers, and solutions that have been, or are being, brought forward to enable translation of genome based technologies into health care. A variety of infrastructure (data systems and EMRs), policy (regulatory, reimbursement, privacy), and research (comparative effectiveness research, learning health system approaches)

Evaluating the Gap Between Research Ethics Review and Data Sharing in the Pediatric Infrastructure Sciences

Evaluating the Gap Between Research Ethics Review and Data Sharing in the Pediatric Infrastructure Sciences
  • Author : Vasiliki Rahimzadeh
  • Publisher : Unknown
  • Release : 21 June 2021
GET THIS BOOK Evaluating the Gap Between Research Ethics Review and Data Sharing in the Pediatric Infrastructure Sciences

"BACKGROUND: Clinical progress in genomics-enabled learning health systems relies on the production, use and exchange of data, including from children. The policies and practices guiding proportionate governance of such production, access and exchange are, however, markedly limited in the pediatric genomics space. The need for policy-practice coherence in genomic data sharing can be accentuated when involving children, from whom data may require special protections. Absent understanding the ethical-legal bases upon which responsible pediatric data sharing rests, present and future children

Sharing Clinical Trial Data

Sharing Clinical Trial Data
  • Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Strategies for Responsible Sharing of Clinical Trial Data
  • Publisher : National Academies Press
  • Release : 20 April 2015
GET THIS BOOK Sharing Clinical Trial Data

Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine

Integrating Genomics Into Personalised Healthcare

Integrating Genomics Into Personalised Healthcare
  • Author : Anonim
  • Publisher : Unknown
  • Release : 21 June 2021
GET THIS BOOK Integrating Genomics Into Personalised Healthcare

The Joint Research Centre organised a high-level scientific conference, entitled 'Integrating genomics into personalised healthcare: a science-for-policy perspective', on 12-13 February 2019 in Brussels. This flagship event addressed, inter alia, current and future genome-based screening and diagnoses schemes in terms of quality assurance and implications for individuals, patients, the health care sector and society at large. The focus of the event was on supporting patient-centric policies, covering important aspects such, data privacy and ownership and security of the genetic information produced,

Clinical Implementation of Next generation Sequencing Technologies in France and Quebec

Clinical Implementation of Next generation Sequencing Technologies in France and Quebec
  • Author : Gabrielle Bertier
  • Publisher : Unknown
  • Release : 21 June 2021
GET THIS BOOK Clinical Implementation of Next generation Sequencing Technologies in France and Quebec

"The decreasing cost of next-generation sequencing (NGS) technologies has resulted in their increased use in research, and in the clinical context. Indeed, the correct interpretation of a human genome can enable better prevention, diagnosis and treatment strategies. Significant public investments in NGS have been made in developed nations to realise the promise of personalized medicine. Yet, today the sequencing and analysis of a patient's exome or genome is only offered as a clinical test in a few clinics around the

Managing Health in the Genomic Era

Managing Health in the Genomic Era
  • Author : Vincent Henrich,Lori A. Orlando,Brian H. Shirts
  • Publisher : Academic Press
  • Release : 27 June 2020
GET THIS BOOK Managing Health in the Genomic Era

In Managing Health in the Genomic Era: A Guide to Family Health History and Disease Risk, Drs. Vincent C. Henrich, Lori A. Orlando, and Brian H. Shirts discuss the practical considerations surrounding the use of genomic and genetic tests to manage patient health, to provide adult disease risk assessment, to improve diagnosis, and to support effective interventions and treatment. In 10 chapters, evidence-based information and case studies are described and examine the central place of family health history (FHH) in genomic

Managing Health in the Genomic Era

Managing Health in the Genomic Era
  • Author : Vincent Henrich,Lori A. Orlando,Brian H. Shirts
  • Publisher : Academic Press
  • Release : 29 July 2020
GET THIS BOOK Managing Health in the Genomic Era

In Managing Health in the Genomic Era: A Guide to Family Health History and Disease Risk, Drs. Vincent C. Henrich, Lori A. Orlando, and Brian H. Shirts discuss the practical considerations surrounding the use of genomic and genetic tests to manage patient health, to provide adult disease risk assessment, to improve diagnosis, and to support effective interventions and treatment. In 10 chapters, evidence-based information and case studies are described and examine the central place of family health history (FHH) in genomic

Ensuring the Integrity Accessibility and Stewardship of Research Data in the Digital Age

Ensuring the Integrity  Accessibility  and Stewardship of Research Data in the Digital Age
  • Author : Institute of Medicine,National Academy of Engineering,National Academy of Sciences,Committee on Science, Engineering, and Public Policy,Committee on Ensuring the Utility and Integrity of Research Data in a Digital Age
  • Publisher : National Academies Press
  • Release : 17 December 2009
GET THIS BOOK Ensuring the Integrity Accessibility and Stewardship of Research Data in the Digital Age

As digital technologies are expanding the power and reach of research, they are also raising complex issues. These include complications in ensuring the validity of research data; standards that do not keep pace with the high rate of innovation; restrictions on data sharing that reduce the ability of researchers to verify results and build on previous research; and huge increases in the amount of data being generated, creating severe challenges in preserving that data for long-term use. Ensuring the Integrity,

Public Health Genomics

Public Health Genomics
  • Author : Paul Lacaze,Gareth Baynam
  • Publisher : Frontiers Media SA
  • Release : 17 October 2019
GET THIS BOOK Public Health Genomics

The use of human genetic data has the potential to significantly improve healthcare, however a range of scientific, ethical and practical implementation barriers remain.