Living And Dying With Dementia
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📒Living And Dying With Dementia ✍ Neil Small
✏Living and Dying with Dementia Book Summary : This title describes what might be achieved if the values and best practice of both dementia care and palliative care are brought together.
📒In Death S Waiting Room ✍ Anne-Mei The
✏In Death s Waiting Room Book Summary : Nederland telt op dit moment 250.000 dementerenden en hun aantal neemt toe. Ooit treft wellicht onze ouders, onze geliefden of onszelf dit lot. Anne-Mei The werkte als onderzoeker twee jaar in een verpleeghuis. Zij onthult wat meestal verborgen blijft: de beslissing om te stoppen met behandelen. De armoede en voodoo-rituelen van de gekleurde verzorgenden. Problemen die kunnen optreden met de familie. Spanningen, agressie en seks op de afdeling. Maar ze maakt ons ook deelgenoot van ontroerende en hilarische taferelen. Daarnaast ontrafelt The 'de zaak 't Blauwbörgje' die in de jaren negentig in het nieuws kwam. De familie van een diep demente man beschuldigde het verpleeghuis van poging tot moord. Wat ging er mis? En kan zoiets weer gebeuren? Het boek leest als een roman en zet eenieder aan het denken over de invulling van zijn of haar eigen levenseinde in het geval van dementie.
✏Living and Dying with Advanced Dementia A Prospective Cohort Study of Symptoms Service Use and Care at the End of Life Book Summary : Background: Increasing number of people are dying with advanced dementia. Comfort and quality of life are key goals of care. Aims: To describe (1) physical and psychological symptoms, (2) health and social care service utilisation and (3) care at end of life in people with advanced dementia. Design: 9-month prospective cohort study. Setting and participants: Greater London, England, people with advanced dementia (Functional Assessment Staging Scale 6e and above) from 14 nursing homes or their own homes. Main outcome measures: At study entry and monthly: prescriptions, Charlson Comorbidity Index, pressure sore risk/severity (Waterlow Scale/Stirling Scale, respectively), acute medical events, pain (Pain Assessment in Advanced Dementia), neuropsychiatric symptoms (Neuropsychiatric Inventory), quality of life (Quality of Life in Late-Stage Dementia Scale), resource use (Resource Utilization in Dementia Questionnaire and Client Services Receipt Inventory), presence/type of advance care plans, interventions, mortality, place of death and comfort (Symptom Management at End of Life in Dementia Scale). Results: Of 159 potential participants, 85 were recruited (62% alive at end of follow-up). Pain (11% at rest, 61% on movement) and significant agitation (54%) were common and persistent. Aspiration, dyspnoea, septicaemia and pneumonia were more frequent in those who died. In total, 76% had ‘do not resuscitate’ statements, less than 40% advance care plans. Most received primary care visits, there was little input from geriatrics or mental health but contact with emergency paramedics was common. Conclusion: People with advanced dementia lived with distressing symptoms. Service provision was not tailored to their needs. Longitudinal multidisciplinary input could optimise symptom control and quality of life.
📒Between Remembering And Forgetting ✍ James Woodward
✏Between Remembering and Forgetting Book Summary : We are increasingly aware of the economic and emotional cost of dementia, but its spiritual dimension is often overlooked. Between Remembering and Forgetting brings together contributions from distinguished and experienced practitioners in the front line of dementia research and care to reflect on this, and to explore the implications for Churches and other faith groups, as well as for individual carers. A practical focus offers not only a critique of areas for future research and development in the field of dementia, but also directs the reader to further resources. The Editor was for ten years Director of The Leveson Centre, which brings together for study, reflection and the exchange of ideas and information those who believe that older people should not be considered passive recipients of care, but as valued and cherished members of society who can inform and enrich the lives of others. In particular the Centre is developing an understanding of spirituality as lived by older people, and aims to support them to express their spiritual awareness.
📒Dementia ✍ Claire Biernacki
✏Dementia Book Summary : Our perceptions of dementia and what dementia care should constitute have changed dramatically over the past 20 years. Research has uncovered a mass of information concerning all aspects of dementia. This wealth of information should be reflected in a dramatic change, indeed a metamorphosis, in the way people with dementia are cared for. No such change has occurred. Dementia - Metamorphosis in Care will address the need for change and provide practitioners with a means of understanding why adhering to the old model – the medical approach – can be damaging in current care settings. Practitioners are advised on what is needed from them in order that they can positively influence the lives of those living with dementia. The importance of the role of professional carer and the responsibility they carry regarding whether or not care improves, is underlined throughout the book.
📒The Inner Life Of The Dying Person ✍ Allan Kellehear
✏The Inner Life of the Dying Person Book Summary : This unique book recounts the experience of facing one's death solely from the dying person's point of view rather than from the perspective of caregivers, survivors, or rescuers. Such unmediated access challenges assumptions about the emotional and spiritual dimensions of dying, showing readers that—along with suffering, loss, anger, sadness, and fear—we can also feel courage, love, hope, reminiscence, transcendence, transformation, and even happiness as we die. A work that is at once psychological, sociological, and philosophical, this book brings together testimonies of those dying from terminal illness, old age, sudden injury or trauma, acts of war, and the consequences of natural disasters and terrorism. It also includes statements from individuals who are on death row, in death camps, or planning suicide. Each form of dying addressed highlights an important set of emotions and narratives that often eclipses stereotypical renderings of dying and reflects the numerous contexts in which this journey can occur outside of hospitals, nursing homes, and hospices. Chapters focus on common emotional themes linked to dying, expanding and challenging them through first-person accounts and analyses of relevant academic and clinical literature in psycho-oncology, palliative care, gerontology, military history, anthropology, sociology, cultural and religious studies, poetry, and fiction. The result is an all-encompassing investigation into an experience that will eventually include us all and is more surprising and profound than anyone can imagine.
📒Supportive Care For The Person With Dementia ✍ Julian Hughes
✏Supportive Care for the Person with Dementia Book Summary : Supportive Care for the person with dementia provides a broad and full perspective, drawing upon the experience and expertise of a wide range of internationally-based professionals to outline a model of supportive care that will provide good quality and holistic care for people with dementia.
📒Explorations In Dementia ✍ Mike Bender
✏Explorations in Dementia Book Summary : Drawing on contemporary theoretical concepts including multiple selves, personal construct theory, intrapsychic survival and the effect of historical and political factors on older people's well being, the author calls for a more positive and constructive approach to improving the lives of people with dementia.
📒Oxford Textbook Of Old Age Psychiatry ✍ Tom Dening
✏Oxford Textbook of Old Age Psychiatry Book Summary : Broad in scope and with global appeal The Oxford Textbook of Old Age Psychiatry, second edition is the definitive resource on old age psychiatry. It comprehensively provides the latest knowledge on the science and practice of treating later life mental disorders, focusing on the health and social issues that arise around ageing, dementia, co-morbidity, dependency, and the end of life in progressively ageing societies across the world. Published in previous incarnations as the much loved Psychiatry in the Elderly, this core resource for all old age psychiatrists, trainees, and other clinical professionals treating older people's mental health, has been fully revised, updated, and significantly expanded. Twelve months inclusive access to the online version, including the full text (which can be browsed by the contents list, index, or searched), links from references to external sources (via PubMed, ISI, and CrossRef), and the ability to download all figures and illustrations into PowerPoint ensures that it remains the leading text on old age psychiatry in the field. Maintaining the classic combination of comprehensive coverage, clear writing style, and the provision of authoritative and up-to-date information from earlier editions, this highly respected volume covers the underpinning basic science, both the neurobiological and social varieties, clinical practice, and specific disorders, as well as providing information on psychiatric services for older people, and medico-legal and ethical issues that often present hard challenges for those treating older patients. Taking a global approach by highlighting both the common burdens and the differences in management from country to country and with a much expanded cast of contributors providing a truly international perspective, The Oxford Textbook of Old Age Psychiatry, second edition includes information on all the latest improvements and changes in the field. New chapters are included to reflect the development of old age care; covering palliative care, the ethics of caring, and living and dying with dementia. Existing chapters have also been revised and updated throughout and additional information is included on brain stimulation therapies, memory clinics and services, and capacity, which now includes all mental capacity and decision making. Providing extensive coverage and written by experts the field, the second edition of the Oxford Textbook of Old Age Psychiatry is an essential resource; no old age psychiatrist, trainee, or anyone working in the field of mental health care for older people should be without a copy on their bookshelf.
📒Diagnosis And Management Of Dementia ✍ Gordon K. Wilcock
✏Diagnosis and management of dementia Book Summary : Organised services for those with memory disorders are growing. This growth is stimulated by an increase in the number of people with memory problems and by an increased appreciation of the complexity of the needs of such patients. Further growth is likely, especially now that we appear tohave crossed the threshold of effective treatment for many patients with dementia. With these advances has come the recognition of the necessity for an interdisciplinary approach to management. Diagnosis and Management of Dementia: A Manual for Memory Disorders Teams is an edited volume coveringall aspects of the operation of a memory disorders team. It is aimed at all those working in the dementia or memory disorders team, whether in a clinic or a community setting. The book is divided into three sections. Section One takes the reader through the practical details of setting up andorganising a clinic, from timetabling, through managing information, to the assessments needed and the opportunities such a service provides. Section Two deals with the diagnostic process; and Section Three addresses management issues, from carer support, pharmacological and physiologicalinterventions, through managing common problems, to the role of the primary care physician. An appendix contains the results of a survey of memory disorder services. This survey provides the reader with examples of other services and demonstrates the wide variation in how these services operate.The manual is unique in that it combines up-to- date thinking on diagnosis and management with practical and helpful ideas on how to run a dementia or memory disorders service.