Responsible Genomic Data Sharing

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  • Author : Xiaoqian Jiang, PhD
  • Publisher : Academic Press
  • Pages : 384 pages
  • ISBN : 9780128161975
  • Rating : /5 from reviews
CLICK HERE TO GET THIS BOOK >>>Responsible Genomic Data Sharing

Download or Read online Responsible Genomic Data Sharing full in PDF, ePub and kindle. this book written by Xiaoqian Jiang, PhD and published by Academic Press which was released on 15 July 2019 with total page 384 pages. We cannot guarantee that Responsible Genomic Data Sharing book is available in the library, click Get Book button and read full online book in your kindle, tablet, IPAD, PC or mobile whenever and wherever You Like. Recent technological advances have dramatically decreased the cost of genome sequencing, making it more affordable to collect genomic data from private citizens and patients, and subsequently employ this data to support new biomedical research and drug discovery. In Responsible Genomic Data Sharing: Challenges and Approaches international experts in genomics research, bioinformatics, and digital security analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for Genomics and Health, the Beacon Network, and the Matchmaker Exchange, are discussed in-depth, illuminating pathways forward for new genomic data sharing efforts across research and clinical practice, industry and academia. Fully examines policy and technical aspects of genomic data sharing in research and clinical practice Addresses privacy preserving technologies and how they can be applied to enable responsible genomic data sharing Employing illustrative case studies, analyzes emerging genomic data sharing efforts, common challenges, and lessons learned Features chapter contributions from international experts in responsible approaches to genomic data sharing

Responsible Genomic Data Sharing

Responsible Genomic Data Sharing
  • Author : Xiaoqian Jiang, PhD,Haixu Tang, PhD
  • Publisher : Academic Press
  • Release : 15 July 2019
GET THIS BOOK Responsible Genomic Data Sharing

Recent technological advances have dramatically decreased the cost of genome sequencing, making it more affordable to collect genomic data from private citizens and patients, and subsequently employ this data to support new biomedical research and drug discovery. In Responsible Genomic Data Sharing: Challenges and Approaches international experts in genomics research, bioinformatics, and digital security analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for

Comparing Genomic Data Sharing Policies from the National Institutes of Health Global Alliance and Reg4All

Comparing Genomic Data Sharing Policies from the National Institutes of Health  Global Alliance  and Reg4All
  • Author : Katherine L. Kwong
  • Publisher : Unknown
  • Release : 08 December 2021
GET THIS BOOK Comparing Genomic Data Sharing Policies from the National Institutes of Health Global Alliance and Reg4All

Genomic data sharing has become increasingly important with "big data" genomics. Successful genomic data sharing requires multiple stakeholders cooperating with one another. Using discourse analysis, I compared three proposed genomic data sharing policies created by the National Institutes of Health, Reg4All and the Global Alliance for Genomics and Health. Data producers, data users, funders, participants, and end users were differently involved in the policy development process leading to policies that prioritize different needs and interests in genomic data sharing.

Genomic Data Sharing

Genomic Data Sharing
  • Author : Jennifer B. Mccormick,Jyotishman Pathak
  • Publisher : Academic Press
  • Release : 01 March 2022
GET THIS BOOK Genomic Data Sharing

Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharing. In this book, international leaders in genomic data examine these issues in-depth, offering practical case studies that highlight key successes, challenges and opportunities. Sections discuss the eMERGE Network, Undiagnosed Disease Network, Vanderbilt Biobank, Marshfield Clinic Biobank, Minnesota Authorization, Rochester Epidemiology Project, NIH sponsored biobanks, GINA, and Global Alliance for Genomics and Health (GA4GH). In addition

Responsible Genomic Data Sharing

Responsible Genomic Data Sharing
  • Author : Xiaoqian Jiang,Haixu Tang
  • Publisher : Academic Press
  • Release : 14 March 2020
GET THIS BOOK Responsible Genomic Data Sharing

Responsible Genomic Data Sharing: Challenges and Approaches brings together international experts in genomics research, bioinformatics and digital security who analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for Genomics and Health, the Beacon Network, and the Matchmaker Exchange, are discussed in-depth, illuminating pathways forward for new genomic data sharing efforts across research and clinical practice, industry and academia. Addresses privacy preserving technologies and

Evaluating the Gap Between Research Ethics Review and Data Sharing in the Pediatric Infrastructure Sciences

Evaluating the Gap Between Research Ethics Review and Data Sharing in the Pediatric Infrastructure Sciences
  • Author : Vasiliki Rahimzadeh
  • Publisher : Unknown
  • Release : 08 December 2021
GET THIS BOOK Evaluating the Gap Between Research Ethics Review and Data Sharing in the Pediatric Infrastructure Sciences

"BACKGROUND: Clinical progress in genomics-enabled learning health systems relies on the production, use and exchange of data, including from children. The policies and practices guiding proportionate governance of such production, access and exchange are, however, markedly limited in the pediatric genomics space. The need for policy-practice coherence in genomic data sharing can be accentuated when involving children, from whom data may require special protections. Absent understanding the ethical-legal bases upon which responsible pediatric data sharing rests, present and future children

Applied Genomics and Public Health

Applied Genomics and Public Health
  • Author : George P. Patrinos
  • Publisher : Academic Press
  • Release : 13 November 2019
GET THIS BOOK Applied Genomics and Public Health

Applied Genomics and Public Health examines the interdisciplinary and growing area of how evidence-based genomic knowledge can be applied to public health, population health, healthcare and health policies. The book gathers experts from a variety of disciplines, including life sciences, social sciences, and health care to develop a comprehensive overview of the field. In addition, the book delves into subjects such as pharmacogenomics, genethics, big data, data translation and analysis, economic evaluation, genomic awareness and education, sociology, pricing and reimbursement,

Privacy Confidentiality and Health Research

Privacy  Confidentiality  and Health Research
  • Author : William W. Lowrance
  • Publisher : Cambridge University Press
  • Release : 21 June 2012
GET THIS BOOK Privacy Confidentiality and Health Research

The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are

Privacy preserving Genomic Data Publishing Via Differential Privacy

Privacy preserving Genomic Data Publishing Via Differential Privacy
  • Author : Tanya Khatri
  • Publisher : Unknown
  • Release : 08 December 2021
GET THIS BOOK Privacy preserving Genomic Data Publishing Via Differential Privacy

"Privacy-preserving data publishing is a mechanism for sharing data while ensuring the privacy of individuals is preserved in the published data and utility is maintained for data mining and analysis. There is a huge need for sharing genomic data to advance medical and health research. However, since genomic data is highly sensitive and the ultimate identifier, it is a big challenge to publish genomic data while protecting the privacy of individuals in the data. In this thesis, we address the

Enhancing Access to and Sharing of Data Reconciling Risks and Benefits for Data Re use across Societies

Enhancing Access to and Sharing of Data Reconciling Risks and Benefits for Data Re use across Societies
  • Author : OECD
  • Publisher : OECD Publishing
  • Release : 26 November 2019
GET THIS BOOK Enhancing Access to and Sharing of Data Reconciling Risks and Benefits for Data Re use across Societies

This report examines the opportunities of enhancing access to and sharing of data (EASD) in the context of the growing importance of artificial intelligence and the Internet of Things. It discusses how EASD can maximise the social and economic value of data re-use and how the related risks and challenges can be addressed. It highlights the trade-offs, complementarities and possible unintended consequences of policy action – and inaction. It also provides examples of EASD approaches and policy initiatives in OECD countries

Sharing Clinical Trial Data

Sharing Clinical Trial Data
  • Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Strategies for Responsible Sharing of Clinical Trial Data
  • Publisher : National Academies Press
  • Release : 20 April 2015
GET THIS BOOK Sharing Clinical Trial Data

Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine

Managing Health in the Genomic Era

Managing Health in the Genomic Era
  • Author : Vincent Henrich,Lori A. Orlando,Brian H. Shirts
  • Publisher : Academic Press
  • Release : 27 June 2020
GET THIS BOOK Managing Health in the Genomic Era

In Managing Health in the Genomic Era: A Guide to Family Health History and Disease Risk, Drs. Vincent C. Henrich, Lori A. Orlando, and Brian H. Shirts discuss the practical considerations surrounding the use of genomic and genetic tests to manage patient health, to provide adult disease risk assessment, to improve diagnosis, and to support effective interventions and treatment. In 10 chapters, evidence-based information and case studies are described and examine the central place of family health history (FHH) in genomic

Genomic and Precision Medicine

Genomic and Precision Medicine
  • Author : Geoffrey S. Ginsburg,Huntington F Willard
  • Publisher : Academic Press
  • Release : 22 November 2016
GET THIS BOOK Genomic and Precision Medicine

Genomic and Precision Medicine: Translation and Implementation highlights the various points along the continuum from health to disease where genomic information is impacting clinical decision-making and leading to more personalization of health care. The book pinpoints the challenges, barriers, and solutions that have been, or are being, brought forward to enable translation of genome based technologies into health care. A variety of infrastructure (data systems and EMRs), policy (regulatory, reimbursement, privacy), and research (comparative effectiveness research, learning health system approaches)

The Ethics of Medical Data Donation

The Ethics of Medical Data Donation
  • Author : Jenny Krutzinna,Luciano Floridi
  • Publisher : Springer
  • Release : 16 January 2019
GET THIS BOOK The Ethics of Medical Data Donation

This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate